Amyloidosis Timeline

Here is a timeline of events during my chemo treatment for amyloidosis at Princess Margaret Hospital. While it’s not directly related to my photography work it, and it’s new friend, coronavirus. is affecting what I can and can’t do. Indulge me!

Cool Timeline

2020
Oct 23

It’s good for you and it’s great for me

It’s certainly good for me – only the second Guiness I’ve had in the past 9 months, thanks to the constraints of chemotherapy. So it was quite nice to walk into an LCBO today for the first time since before COVID to pick up an eight-pack. I can now once…Read on, MacDuff...

Aug 23

Hopefully jumping off the plateau

I reallized it’s been a  while since I last posted about my amyloidosis/chemo adventures, so herewith an update. Some time ago we switched me over from shots – for which I had to go to Princess Margaret Hospital – to a capsule I could take at home. This was in…Read on, MacDuff...

Jun 05

Hump Month

This weekend I start into month 5 – Hump Month! – of my chemotherapy for amyloidosis. After that, and if everything goes well, I’m looking at another 4 months of 101 pills a week. With any luck that will involve nothing more than the same mild nausea, and fatigue. That…Read on, MacDuff...

May 08

Chemo 101

The latest results are in and the news continues to be good. The offending protein levels continue to drop. The change from a shot to a pill has also worked out nicely. Side effects are less bothersome and seem to be limited to fatigue. This seems to accumulate from one…Read on, MacDuff...

Apr 11

A little compassion goes a long way

Today I’m starting the third month of chemotherapy for my amyloidosis out of what I gather will be a 9 month run overall. So far things have been going pretty well; I suspect I have it easier than many with more complex/serious forms of cancer that require more aggressive treatment.…Read on, MacDuff...

Mar 27

I’ll stick with the good news…

After a week that included a full-torso rash that had me looking like a cooked lobster (drug allergy,) swollen legs, a sore hip and a complete lack of sleep it’s always nice to get some good news:

Mar 22

Bad News/Good News

One of the things with the Princess Margaret is that they’re very transparent with report results, etc. If you use their on line portal you can easily be overwhelmed by the amount of data they provide. So it’s always nice to get a phone call once in a while. One…Read on, MacDuff...

Mar 15

One month in…

It’s now been one month since I started chemotherapy for amyloidosis. It’s been a learning curve. The program I’m on is the same as what’s used to treat multiple myeloma, even though this is not a cancer. The recipe – CYBOR-D – is actually online, if you can believe it.…Read on, MacDuff...

Feb 15

Sometimes you just can’t catch a break

I’d considered writing some philosophical rumination on the past couple of months' developments, but that would be completely out of character. The river doesn’t run that deep here at the Tower of Power.