Hopefully jumping off the plateau

Hopefully jumping off the plateau

I reallized it’s been a  while since I last posted about my amyloidosis/chemo adventures, so herewith an update. Some time ago we switched me over from shots – for which I had to go to Princess Margaret Hospital – to a capsule I could take at...
Hump Month

Hump Month

This weekend I start into month 5 – Hump Month! – of my chemotherapy for amyloidosis. After that, and if everything goes well, I’m looking at another 4 months of 101 pills a week. With any luck that will involve nothing more than the same mild...
Chemo 101

Chemo 101

The latest results are in and the news continues to be good. The offending protein levels continue to drop. The change from a shot to a pill has also worked out nicely. Side effects are less bothersome and seem to be limited to fatigue. This seems to accumulate from...
I’ll stick with the good news…

I’ll stick with the good news…

After a week that included a full-torso rash that had me looking like a cooked lobster (drug allergy,) swollen legs, a sore hip and a complete lack of sleep it’s always nice to get some good news: The chemotherapy is working. My light chain protein count has...